Living with a Disability: My Story of Strength and Independence

One Story, Many Journeys

When Joey was first diagnosed, I felt like the world slowed down. There were more questions than answers, more paperwork than peace, and more fear than hope. But there was also something else—an unshakable sense that our journey wasn’t over. It was just beginning.

As Executive Director of Joey’s Journeys, I often get asked: “What inspired all this?” The truth? It was Joey. Our family’s story isn’t about limitations. It’s about the joy, resilience, and growth that comes when we move through life with intention—and when we choose to share our path so others can find their way, too.

“Disability doesn’t define our limits—it reveals our courage. Our journey with Joey showed us the power of persistence, planning, and inclusive exploration.”
— Mitch Levinson, Executive Director, JoeysJourneys.org

Early Challenges and Resilience

The early days were hard. At first, learning to navigate therapies, IEP meetings, insurance calls, and social stigmas—all while trying to just be a mom—was overwhelming.

Over time, we learned how to advocate, adapt, and reframe what “the future” looked like. Although milestones came at their own pace, they came. Ultimately, we found strength in every step.

Resources that helped us:

Parent to Parent USA

CDC: Disability and Health

Travel as a Catalyst for Independence

Our first family trip was both terrifying and transformative. Could Joey handle the sensory overload? Would we find accessible lodging? What if we faced stares or obstacles?

We faced them all—and we overcame them.

What worked? Planning ahead. Calling ahead. Finding places that didn’t just “accommodate” but welcomed us.

That trip changed everything. It wasn’t just about a new destination—it was about a new Joey. We saw confidence, curiosity, and independence bloom.

Learn more about accessible trip planning at Accessible Journeys

Founding Joey’s Journeys

Joey’s transformation inspired us to create something for other families like ours. That’s why we launched Joey’s Journeys—a community-driven platform to empower families navigating disability through accessible travel.

Our mission:

  • Connect families with inclusive destinations
  • Provide destination guides and real travel stories
  • Share expert advice from inclusive travel advocates

We proudly collaborate with incredible leaders like:
WheelchairTravel.org
Curb Free with Cory Lee

We’ll soon be publishing a full partner resource page with even more.

Real Stories from the Community

Since launching, families from across the country have used our guides to plan trips, tackle challenges, and create joyful memories.

One parent told us:

“Your New York City guide helped us plan a trip I never thought was possible. My son still talks about seeing Times Square.”

And from Joey himself (typed with his AAC device):

“I like the train,” he wrote. “The trip was fun. Feeling free is the best part.”

Together, we’ve supported dozens of trips, published travel guides, and helped reframe what travel looks like for families living with a disability.

Living with a Disability: What Strength Really Means

Living with a disability isn’t about doing everything alone. It’s about building systems of support that enable autonomy, dignity, and joy.

Travel plays a profound role in that process. When kids like Joey visit new places, they don’t just see new things—they see new versions of themselves.

“Travel didn’t just open new places—it opened Joey’s confidence, curiosity, and independence.”
— Executive Director, JoeysJourneys.org We believe accessibility is about more than ramps and checklists. It’s about designing a world that says, “You belong here.”

You Can Help Write the Next Chapter

Here’s how you can be part of this movement:

  • Donate – Every gift funds a travel guide, supports a family, or helps one more child experience the freedom of travel.
  • Share – Spread our blog and stories on social media or email.
  • Introduce – Know a travel blogger, expert, or organization that aligns? We’d love to connect.
  • Join – Be part of a growing inclusive travel community.

“Together, we can make the world more open, joyful, and inclusive—one journey at a time.”

Call to Action

Join our mission to empower travelers of all abilities.
Donate Now
Share Our Stories
Join the Inclusive Travel Community

Donate to Support a Camper

Resources and Partners

Scroll to Top